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Gestational
15 - 20 weeks
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Learning about the diagnosis from our doctors
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Gestational
16 - 36 weeks
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Seeking out more information on our own about this diagnosis
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Gestational
19 - 26 weeks
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Planning for the Birth:
- answering our own questions with research
- sharing the news with our kids
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Gestational
26 weeks to Day 1
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Prepared as best as possible for anything to happen - we await the moment as time ticks closer towards our
due date and Anthonys Birth Day.
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Post Pardum
Day 1 to Discharge
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We made a plan of care ... now its time to see how our little man settles into his new life.
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Survivor
Making it home from the hospital
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Making it beyond the statistics and the first week.
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Survivorship
Moving on to live a life of love
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Join us as we share what daily life is like for a Trisomy 13 survivor and our family.
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PLAN OF CARE
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A Plan of Care is a snapshot of decisions parents have made for the
care of their child given a particualr set of circumstances. Physicians are required to fulfill the parents desires
for the care of the patient provided it is reasonalble given the medical diagnosis. This section discusses what
and how parents need to communicate to their childs physicians in order to improve communication and ensure each party
receives the necessary information to move forward in a productive manner.
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Specific details regarding Anthonys Trisomy 13 medical condition with
links to sites that explain these medical terminologies.
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to
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A living tribute to a boy who lived a life of heroic virtue in fidelity
to God's Love
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