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The Gregory-Arritola Family

Home | Our Family | Highlights | Chronological Overview | Prenatal Diagnosis | Birth Plan | Birth Day | Daily Life with Trisomy 13 | T13 Medical History | Resourceful Links | Physicians Letter | Contact Us | Emmanuel's Foundation | Quotes | Photos & Guest Book

Summary and Overview of our T13 Journey

Point and Click to travel to various portions of our T13 journey and experiences

We learned prenatally that Anthony had T13, and our journey of emotions, pushback and acomplishments is noted on the following pages in relation to what I can only explain as human thoughts, feelings and experiences.  All the way through, Gods grace surrounded us in extraordinary ways.  These pages only tell of what most perceive from the outside looking in.  But we know that Anthony had a higher calling to holiness and for a brief look at his life, feel free to skip to his eulogy on his memorial page.

   
SUMMARY OF OUR JOURNEY
AGE
PHASE
DETAILS
 
Gestational
 
15 - 20 weeks
Learning about the diagnosis from our doctors
 
Gestational
 
16 - 36 weeks
Seeking out more information on our own about this diagnosis
 
Gestational
 
19 - 26 weeks
Planning for the Birth:
- answering our own questions with research
- sharing the news with our kids
 
Gestational
 
26 weeks to Day 1
Prepared as best as possible for anything to happen - we await the moment as time ticks closer towards our due date and Anthonys Birth Day. 
 
Post Pardum
 
Day 1 to Discharge
We made a plan of care ... now its time to see how our little man settles into his new life. 
 
Survivor
 
Making it home from the hospital
 
Making it beyond the statistics and the first week. 
 
Survivorship
 
Moving on to live a life of love
 
Join us as we share what daily life is like for a Trisomy 13 survivor and our family.

 
PLAN OF CARE

 
A Plan of Care is a snapshot of decisions parents have made for the care of their child given a particualr set of circumstances.  Physicians are required to fulfill the parents desires for the care of the patient provided it is reasonalble given the medical diagnosis.  This section discusses what and how parents need to communicate to their childs physicians in order to improve communication and ensure each party receives the necessary information to move forward in a productive manner.   

 
Anthony's MEDICAL SUMMARY

 

 
Specific details regarding Anthonys Trisomy 13 medical condition with links to sites that explain these medical terminologies. 

 
to

 

 
A living tribute to a boy who lived a life of heroic virtue in fidelity to God's Love 

Visit Anthony on other Web Sites
as his story is shared with others facing similar challenges:
 
Anthony's Story at Be Not Afraid Website for those facing a negative prenatal diagnosis - From the BE NOT AFRAID site you can click on Home to get to the main page to peruse their entire site.
Treasured Memories on Living with Trisomy 13 Website
A Trisomy 13 Survival Story on Facing a Negative Prenatal Diagnosis Website

E-Mail Support : Supporting those facing "Failure to Thrive" or "Incompatibility with Life" Issues

Home Page | Our Family | Highlights | Overview

Prenatal Diagnosis | Birth Plan | Birth Day | Daily Life with Trisomy 13

T13 Medical History | Resourceful Links | Physicians Letters

Contact Us | Quotes | Photo Albums & Guest Book